Since my last update about finding out that Kasey has a disease called Ulcerative Colitis, he and I have had to pray and discuss a lot about what our life looks like now, and what kind of treatment options we feel are best suited for him. We would both like to thank those of who have been praying along side us. This journey has been hard so far, and we are so thankful for your support, love, and encouragement. To put it nicely, it has been a whirlwind of emotions, questions, confusion, and concerns. Even with our wedding just a few short months away, Kasey's health has been our priority in life. Our thoughts and our energy have gone into making sure Kasey is the healthiest he can be. We have almost had to put a pause button, momentarily, on everything else, just so we can truly feel confident about our big life decisions about his health. Everything that the doctors are offering us are all life altering options. As my sister-in-law put it, "Kasey and I are having to grow up faster then others, by making decisions that others never have to think about." Needless-to-say, it's a lot.
After getting out of the hospital, Kasey and I have shared excitement with each other for what God has done in his life. Everything seems like a victory. When he eats and doesn't automatically go to the bathroom, we rejoice. (You never realize what you will be thankful for until it is taken away from you). Although we have been able to see some great strides in the right direction, we have recently been experiencing more setbacks. I took Kasey to get a sigmoidoscopy, last week, in oder for the doctors to do follow up tests on how his colon is doing. Which meant, again, my sweet love was put under and the doctors checked him out. Surprisingly his colon looked beautiful! (Things I never thought I would say).
Unfortunately, after the procedure, Kasey's bleeding started getting worse, and it was very reminiscent of his condition before going into the hospital. So, back to the GI we went. This time, the doctors physician (who was with us some of the time in the hospital), told us that since the steroids weren't working, we would need to look into a more "promising" alternative. She suggested removing his colon or going on immune-altering medication. Not the type of promising suggestions we were looking for. So we left the doctors office and told them we would have to do some serious research and some serious discussing. But we only have so much time with Kasey losing blood. We can't just take a month to pray over everything and visit other doctors offices and ask hundreds of questions, we need to make decisions and we need to make them now. Such a stressful position we are put in. And not to mention that stress makes ulcerative colitis worse - it is like a mean game the disease plays on us.
When I have said that this affects our whole life now, I am not using that term for dramatic affect, it literally alters the way we do things now. What we eat, where we go, how we resolve conflict in our lives, how much we commit to people and responsibilities, and how we view and respond to our relationship with God. Our date night consists of me checking Kasey's pulse in the movie theater, and sitting at our dinner table reading articles about how God uses suffering. Life is just different, not bad, just different.
Kasey and I believe that God could still heal Kasey any moment. But He hasn't, which means we are sifting through tons of information in order to make the best decisions with what we have been given. While this time before our wedding is usually spent planning, preparing, and figuring out ways to celebrate, we have found a new appreciation for each others love and are learning to celebrate in the things that mean the most to us. The way we do things now, is very different. We have to consciously do things on our time, when it isn't the most convenient for us, in order for us to make sure we are slowing down in life and taking care of Kasey's health.
We have grown a new appreciation for the suffering Jesus went through when dying for us. We spend time reading scriptures that remind us that we are not alone in the minimal suffering we are experiencing. We pray a lot. And then we pray more. We do whatever we can that works for us in any given moment when things are hard and confusing. We are learning to trust God, more, with our whole life and believing that He will honor the steps we take. Since there is no big flashing sign that says, "DO THIS," we are having to step out in faith even when we don't see an end or solution to his health issues.
All we ask for, continually, is prayer. Prayer for our decision making. Prayer for wisdom. Prayer for health. Prayer for miracles. And prayer for unity, strength, and a joyful spirit, as we walk through this journey. We are becoming more and more aware, that this isn't a sprint to the finish, it is a marathon that needs endurance. So pray for us if we come to mind - that would be a huge blessing for the both of us.
I give everything to You Lord
Unfortunately, after the procedure, Kasey's bleeding started getting worse, and it was very reminiscent of his condition before going into the hospital. So, back to the GI we went. This time, the doctors physician (who was with us some of the time in the hospital), told us that since the steroids weren't working, we would need to look into a more "promising" alternative. She suggested removing his colon or going on immune-altering medication. Not the type of promising suggestions we were looking for. So we left the doctors office and told them we would have to do some serious research and some serious discussing. But we only have so much time with Kasey losing blood. We can't just take a month to pray over everything and visit other doctors offices and ask hundreds of questions, we need to make decisions and we need to make them now. Such a stressful position we are put in. And not to mention that stress makes ulcerative colitis worse - it is like a mean game the disease plays on us.
When I have said that this affects our whole life now, I am not using that term for dramatic affect, it literally alters the way we do things now. What we eat, where we go, how we resolve conflict in our lives, how much we commit to people and responsibilities, and how we view and respond to our relationship with God. Our date night consists of me checking Kasey's pulse in the movie theater, and sitting at our dinner table reading articles about how God uses suffering. Life is just different, not bad, just different.
Kasey and I believe that God could still heal Kasey any moment. But He hasn't, which means we are sifting through tons of information in order to make the best decisions with what we have been given. While this time before our wedding is usually spent planning, preparing, and figuring out ways to celebrate, we have found a new appreciation for each others love and are learning to celebrate in the things that mean the most to us. The way we do things now, is very different. We have to consciously do things on our time, when it isn't the most convenient for us, in order for us to make sure we are slowing down in life and taking care of Kasey's health.
We have grown a new appreciation for the suffering Jesus went through when dying for us. We spend time reading scriptures that remind us that we are not alone in the minimal suffering we are experiencing. We pray a lot. And then we pray more. We do whatever we can that works for us in any given moment when things are hard and confusing. We are learning to trust God, more, with our whole life and believing that He will honor the steps we take. Since there is no big flashing sign that says, "DO THIS," we are having to step out in faith even when we don't see an end or solution to his health issues.
All we ask for, continually, is prayer. Prayer for our decision making. Prayer for wisdom. Prayer for health. Prayer for miracles. And prayer for unity, strength, and a joyful spirit, as we walk through this journey. We are becoming more and more aware, that this isn't a sprint to the finish, it is a marathon that needs endurance. So pray for us if we come to mind - that would be a huge blessing for the both of us.
I give everything to You Lord
